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| Forum Association des amis des myasthéniques du maroc | Modification: 5/9/2005 Création: 27/7/2001 |
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SANTE MALADIE MEDECIN MAROC NEUROLOGIE MYASTHENIE HASSAN_II MOHAMMED_VI IDRISSI MAIDOC2 MAIDOC MESTINON MYTELASE TEGELINE IMMUNOGLOBULINES PLASMAPHERESE THYMUS ASSOCIATION |
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LIVING WITH MYASTHENIA
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Updated April 1, 1999
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Myasthenia Gravis causes major lifestyle changes for patients and their families. As patients, spouses, parents, sons or daughters, they all live with the chronic illness Myasthenia Gravis. The unpredictability, the frustrations, the costs, and the weaknesses affect the entire family. Even medication-free remission without myasthenic symptoms does not guarantee the myasthenic patient will not have future problems. Overwork, stresses, and infections may cause problems. A patient should strive for a balance of work, home, and social obligations. This website is dedicated to helping myasthenics reach this balance. Each myasthenic must learn his body and his disease. Each myasthenic is in charge of his own person.
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Live one day at a time to the fullest
listening to your body as the hours pass and daily living activities occur.
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The purpose of this website is to connect myasthenics with information and most importantly with each other. Too many myasthenics have lived alone with their myasthenia gravis for 20 - 30 - 40 years or more.
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May no myasthenia gravis patient ever feel alone with their disease.
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Myasthenia Gravis Meetings
Updated 4/1/99
Those Who Wish to Start Myasthenia Gravis Meetings
Myasthenia Gravis Organizations
The Myasthenia Gravis Foundation Begins by Pat Wilson
On-Line Myasthenia Gravis Email Support
Myasthenia Gravis Books and Magazine Articles
Nuggets of Wisdom from the Nutmeg by Irving Beck
Myasthenia Gravis Foundation Educational Materials
Personal Experiences
Growing Up and Living with Myasthenia Gravis by Amy and Donna Whittaker
"Going Into Remission" by Irv Beck
"My Own Story" by Krista Williams
"The National Myasthenia Gravis Foundation Meeting" by Angela Williams
"I heard the owl call my name" by Fenton J. Moore
"Sudden Devastation -My Story" by Laurie Castaldo
"From 100% to 20%" by Carol Kennedy
"An MGer's Guide to Guilt-Free Parenting" by Lynn Roaten Terrell
"My Story" by Joan Baker
"Gingies' Redbird Story" by Virginia Wilson
Remission by Melanie Gworek
Daily Living with Myasthenia
Caring for a myasthenic body
Feeding a myasthenic body
Exercising a myasthenic body
Dentistry and Myasthenia Gravis
Hospitalizing a myasthenic body
Working with Myasthenia Gravis
Myasthenia Gravis - The Teen Years
Adjusting to Chronic Illness
Get Involved for Your Own Sake
Links for more Myasthenia Gravis information
Links for more Medical and General Information
Links for Specific Disease Entities
Links for the Arts on the 'Net
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ACKNOWLEDGEMENTS
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DISCLAIMER: All information is for educational purposes only. Contact your physician to make medical decisions
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Copyright 1996. 1997, 1998, 199 Donna Whittaker and MG Friends
Email Donna Whittaker
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