MYASTHENIC SYNDROMES from Washington University

The following links contain information on myasthenia gravis that has not been reviewed by the Myasthenia Gravis Foundation of America (MGFA).
The MGFA assumes no responsibility for the content of these pages.
They are provided as a courtesy to the users of this webpage.
Decisions on individual treatment should always be made by a physician.


GENERAL INFORMATION

MYASTHENIC SYNDROMES from Washington University - St. Louis

Myasthenia Gravis from the National Institutes of Health

Myasthenia Gravis from Yale University

Disorders of the Neuomuscular Junction: Myasthenia Gravis from Baylor University

Basic Myasthenia Gravis Information from Case Western Reserve University


http://
umm.drkoop.com/conditions/ency/article/000712.htm


Ask Noah About: Myasthenia Gravis

Questions & Answers by Dr. Henry Kaminski.


DIAGNOSIS

Tensilon Test

AchR antibody test
http://www.interchange.ubc.ca/neuroimm/mg.html http://umm.drkoop.com/conditions/ency/article/003576.htm

Oral function testing for myasthenia gravis (Ed. - developing techniques)
Oral functions in patients with Neuromuscular Diseases

TREATMENT
Thymoma and Myasthenia Gravis by Nick Willcox

Plasmapheresis: A Treatment Option for Patients with Myasthenia Gravis

Drugs which may aggravate MG

Side effects of some medicines used to treat MG -
Dr. Stanley Freedman

Intravenous Immune Globulin Therapy for Neurologic Diseases Annals of Internal Medicine 1 May 1997.26:721-730. Marinos C. Dalakas, MD

INTRAVENOUS IMMUNOGLOBULIN:
Prevention and Treatment of Disease from the National Institutes of Health

Herbal Remedies and Alternative Treatments - Dr. Sarah Yates

INDIGENT DRUG PROGRAM INFORMATION

ICN Pharmaceutical - products including Mestinon, Mestinon Timespan, Mestinon Syrup and Prostigmin. Myasthenia Gravis Association of Western Pennsylvania

Indigent drug programs listed by Company.
Pharmaceutical Research & Manufacturing of America (PHRMA)


MEDICAL INFORMATION & RESEARCH

The Neurosciences Group (U.K.) - Profs. Angela Vincent and Nick Wilcox

Clinical Trails Database from the National Institutes of Health.

MEDLINEplus from the National Library of Medicine of the National Institutes of Health.

Internet Grateful Med from the National Library of Medicine of the National Institutes of Health.

A summary of diagnosis, treatment methods from Emedicine.

MISCELLANEOUS ISSUES

The Effect of Myasthenia Gravis on Human Sexuality

Ocular Myasthenia Gravis

How to Fight MG Fatigue by Jeanne Rhynsburger.

Psychological Aspects of Myasthenia - Garden State Chapter

Vaccinations and Myasthenia Gravis - Dr. Camilla Buckley

A.C.C.E.S.S. program by Gentiva Health Services (free help for disability applications)


INTERNATIONAL MG ORGANIZATIONS

Pakistan Myasthenic Welfare Organisation
E-Mail: Khalid Mehmood Zia, Secretary General

Deutsche Myasthenie Gesellschaft E.V.

Myasthenia Gravis Foundation of Argentina

Myasthenia Gravis Association of the United Kingdom

Myasthenia Gravis Association of Scotland

Association of Myasthenia Gravis in Israel

Belgian Myasthenia Gravis Association

Myasthenia Gravis Association of Queensland

Myasthenia Gravis Australia- National Association

RELATED DISEASE AND HEALTH ORGANIZATIONS

National Organization for Rare Disorders (NORD)

American Autoimmune Related Diseases Association (AARDA)

National Health Council (NHC)

National Charities Information Bureau (NCIB)


PATIENT SUPPORT LINKS

These chat rooms, email lists and online support groups are not monitored by the MGFA and the MGFA assumes no responsibility for their content

A listserv (i.e. email list) for the myasthenic with more than 500 members in 40+ countries
Mgmail

A listserv (i.e. email list) for the ocular myasthenic.
Ocular MG list.

Chats, email lists, online support groups
Patient to Patient Connections

Chat rooms for myasthenia gravis
MG Chats











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HELPFUL LINKS






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